Targeted Project 4

Targeted Project 4 addresses the need to provide a flexible, agile and modular solution to address challenges around treatments for ALS and other diseases. Key research questions include: how data can be curated efficiently in real time; how data can be harvested from a multitude of sources (across different countries and in different languages), how data are managed and stored, and how solutions to processing such multimodal data can be realised.

Access to well-annotated longitudinal patient data, including traditional ALS clinical endpoints, novel digital endpoints, biomarkers and patient biospecimens will be of critical value for informing future research clinical programs.

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